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A guide to living with Ehlers-Danlos syndrome (hypermobility type) : bending without breaking / by Knight, Isobel,1974-; Hakim, Alan.(CARDINAL)685805;
Includes bibliographical references (pages 293-305) and indexes.What is Ehlers-Danlos syndrome -Hypermobility type? -- Symptoms of EDS-HT -- diagnosis of EDS-HT -- Children and EDS-HT -- Adolescents and EDS-HT -- Pain management and adults and EDS-HT -- Other related physical conditions and EDS-HT -- Menstruation, pregnancy, childbirth and the Menopause and EDS-HT -- Psychological support and EDS-HT -- Physiotherapy and pilates management and EDS-HT -- Somatic and related practices -- Complementary health -- alternative therapies -- Specialist therapies and information -- Dancers and EDS-HT -- Sports and activities -- I have EDS-HT -- now what?Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology; information on how osteopathy and nutrition can help; psychological approaches beyond CBT; how to deal with professionals; and, what to expect from support groups and rehabilitation programmes. This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
Subjects: Self-help publications.; Joints; Pain; Ehlers-Danlos syndrome.; Ehlers-Danlos Syndrome; Joint Instability; Articulations; Douleur; Syndrome d'Ehlers-Danlos.;
Available copies: 0 / Total copies: 1
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Conditions of a heart / by Mangle, Bethany,author.(CARDINAL)846725;
After an incident leads to her suspension, eighteen-year-old Brynn's high school persona that hides her secret disability is shattered, and she begins embracing her true self on her journey to self-acceptance.Ages 14 up.Grades 10-12.
Subjects: School fiction.; Novels.; Young adult fiction.; Self-acceptance; Health; Ehlers-Danlos syndrome; Disabilities; High schools;
Available copies: 26 / Total copies: 28
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Floppy : tales of a genetic freak of nature at the end of the world : a disjointed memoir / by Graybeal, Alyssa,1982-author.(CARDINAL)883659;
When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she's finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like? You can find Alyssa's delightfully deadpan comics on Instagram @floppyqueerdo--
Subjects: Autobiographies.; Graybeal, Alyssa, 1982-; Graybeal, Alyssa, 1982-; Ehlers-Danlos syndrome; Ehlers-Danlos syndrome;
Available copies: 3 / Total copies: 3
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Fight + flight / by Machias, Jules,author,illustrator.;
"Avery Hart lives for the thrill and speed of her dirt bike and the pounding thump of her drum kit. But after she's diagnosed with hypermobile Ehlers-Danlos syndrome, a disease that affects her joints, Avery splits her time between endless physical therapy and worrying that her fun and independence are over for good. Sarah Bell is familiar with worry, too. For months, she's been having intense panic attacks. No matter how much she pours her anxiety into making art, she can't seem to get a grip on it, and she's starting to wonder if she'll be this way forever. Just as both girls are reaching peak fear about what their futures hold, their present takes a terrifying turn when their school is seemingly attacked by gunmen. Though they later learn it was an active shooter drill, the traumatic experience bonds the girls together in a friendship that will change the way they view their perceived weaknesses--and help them find strength, and more, in each other."--Grades 4-6.Ages 10 up.
Subjects: Novels.; School fiction.; Young adult fiction.; Friendship; Schools; Middle schools; Emergency drills; Ehlers-Danlos syndrome; Anxiety; Friendships.;
Available copies: 8 / Total copies: 10
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No true believers / by York, Rabiah,1981-author.(CARDINAL)400274;
High school senior Salma Bakkioui, who has a connective tissue disorder, faces prejudice and hidden danger, especially after being framed for a Muslim terrorist act she did not commit.HL620L
Subjects: Thrillers (Fiction); Young adult fiction.; Prejudices; Terrorism; High schools; Schools; Families; Muslims; Ehlers-Danlos syndrome; People with disabilities;
Available copies: 7 / Total copies: 9
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Teen Titans. by Garcia, Kami,author.(CARDINAL)494316; Picolo, Gabriel,artist.(CARDINAL)804640; Haynes, Rob,artist.(CARDINAL)340007; Calderon, David,colorist.(CARDINAL)803063; Abbott, Wes,letterer.(CARDINAL)482589;
When Kori Anderson, who has a connective tissue disorder, and her popular older sister, Kira, participate in a pharmaceutical company's clinical trial, she begins to discover strange powers and hopes to discover the truth about these abilities--and her sister's boyfriend.Ages 13-17.Grades 10-12.
Subjects: Superhero comics. ; Graphic novels. ; Young adult fiction.; Starfire (Fictitious character) ; Teen Titans (Fictitious characters) ; Women superheroes ; Siblings ; Ehlers-Danlos syndrome ; Clinical trials ; Ability ; Self-discovery ;
Available copies: 32 / Total copies: 54
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Dictionary of syndromes and inherited disorders / by Gilbert, Patricia.(CARDINAL)374570; Gilbert, Patricia.A-Z reference book of syndromes and inherited disorders.;
Subjects: Dictionaries.; Genetic disorders; Syndromes;
Available copies: 1 / Total copies: 1
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The 101 most unusual diseases and disorders / by Kelly, Evelyn B.,author.(CARDINAL)528010;
Includes bibliographical references.Pt. 1. Unusual genetic disorders. What you should know about genetic disorders -- Achondroplasia -- ACHOO syndrome -- Alkaptonuria -- Amyotrophic lateral sclerosis (ALS) -- Angelman syndrome -- Ankylosing spondylitis -- Charcot-Marie-tooth disease -- Cri-du-chat -- Ehlers-Danlos syndrome -- Ellis-van Creveld syndrome (EVC) -- Epidermolysis bullosa (EB) -- Fatal familial insomnia -- Hemochromatosis -- Hypertrichosis -- Ichthyosis -- Lesch-Nyhan syndrome -- Porphyria -- Prader-Willi syndrome -- Progeria -- Prognathism -- Uncombable hair syndrome. Pt. 2. Unusual mental health disorders. What you should know about mental health disorders. Alien hand syndrome -- Androphobia -- Bigorexia -- Capgras delusions -- Cotard syndrome -- Diogenes syndrome -- Dissociative identity disorder (DID) -- Erotomania -- Folie a deux -- Hybristophilia -- Hypomania -- Jerusalem syndrome -- Kleptomania -- Micropsia and macropsia -- Munchausen syndrome -- Orthorexia -- Pica -- Renfield syndrome -- Stockholm syndrome -- Trichotillomania.Pt. 3. Unusual environmental diseases and disorders. What you should know about environmental diseases and disorders. Altitude sickness -- Argyria -- Brown recluse bite -- Computer vision syndrome (CVS) -- DES sons and daughters -- Frostbite -- Histoplasmosis -- Jellyfish sting -- Pellagra -- Pneumoconiosis -- Poison ivy -- Prune belly syndrome -- Solenopsis invicta -- Stachybotrys chartarum -- Tech neck syndrome -- Thalidomide embryopathy -- Trench foot -- Vibrio. Pt. 5. Unusual infectious diseases. What you should know about infectious diseases. Cat scratch disease -- Chikungunya -- Creutzfeldt-Jakob disease variant -- Cryptosporidiosis -- Cutaneous larva migrans (CLM) -- Dengue fever -- Ebola -- Elephantiasis -- Enterovirus-D68 -- Hantavirus -- Herpes zoster -- Human bites -- Human botfly -- Leprosy -- Naegleria fowleri -- Necrotizing fasciitis -- Norovirus -- Rocky Mountain spotted fever -- Valley fever -- West Nile virus. Pt. 5. Unusual diseases and disorders with other or unexplained origins. What you should know about diseases and disorders with other or unexplained origins. Anti-NMDA receptor encephalitis -- Aquagenic urticaria -- Bell's palsy -- Bromhidrosis -- Burning mouth syndrome -- Charles Bonnet syndrome -- Foreign accent syndrome -- Guillain-Barre syndrome -- Laryngopharyngeal reflux (LRP) -- Moebious syndrome -- Morgellons -- Multiple system atrophy -- Myasthenia gravis -- Neuroblastoma -- Oral allergy syndrome -- Paresthesia -- Pickwickian syndrome -- Raynaud's phenomenon -- Savants -- Sjogren syndrome -- Synesthesia -- Vitiligo -- Helpful resources for the study of unusual diseases and disorders."This title informs and educates readers about rare and unusual diseases"--"This book explores serious diseases and disorders that most readers have never heard of, ranging from genetic, infectious, and environmental diseases to autoimmune, idiopathic, and mental disorders"--
Subjects: Rare diseases.;
Available copies: 2 / Total copies: 2
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Alphabet kids from ADD to Zellweger syndrome : a guide to developmental, neurobiological and psychological disorders for parents and professionals / by Woliver, Robbie.(CARDINAL)743853;
MARCIVE 03/02/10Includes bibliographical references and index.Acknowledgments -- Introduction -- What You Need To Know -- Warning -- ADD/ADHD (attention-deficit disorder ; attention-deficit/hyperactivity disorder) -- AN (anorexia nervosa) -- APD (auditory processing disorder) -- AS (Aarskog syndrome) -- AS (Angelman syndrome) -- AS (Asperger syndrome) -- ASD (autism spectrum disorder) -- BED (binge-eating disorder) -- BN (bulimia nervosa) -- CA (childhood agoraphobia) -- CAD (childhood adjustment disorder) -- CAS (childhood apraxia of speech) -- CBD (childhood bipolar disorder) -- CSS (clumsy child syndrome) -- CD (childhood depression ) -- CD (conduct disorder) -- CDCS (Cri du Chat syndrome) -- CDD (childhood disintegrative disorder) -- CdLS (Cornelia de Lange syndrome) -- CLS (Coffin-Lowry syndrome) -- CMT (Charcot-Marie-tooth disorder) -- COS (childhood-onset schizophrenia) -- CS (Cockayne syndrome) -- DGS (developmental Gerstmann's syndrome) -- DPD (dependent personality disorder) -- DS (Down syndrome) -- Dyscalculia -- Dysgraphia -- Dyslexia -- Dystonia -- ED (eating disorder) -- EDS (Ehlers-Danlos syndrome) -- ERLD (expressive-receptive language disorder) -- FXS (Fragile X syndrome) -- GAD (general anxiety disorder) -- HPD (histrionic personality disorder) -- HS (hyperlexia syndrome) -- HTD (hypothyroidism disorder) -- LD (learning disability) -- LKS (Landau-Kleffner syndrome) -- LNS (Lesch-Nyhan syndrome) -- MCSS (multiple chemical sensitivities syndrome) -- MD (muscular dystrophy) -- MR (mental retardation) -- MSDD (multisystem developmental disorder) -- NLD (nonverbal learning disorder) -- OCD (obsessive-compulsive disorder) -- ODD (oppositional defiance disorder) -- PAPD (passive-aggressive personality disorder) -- PD (panic disorder) -- PD (personality disorder) -- PDD (pervasive developmental disorder) -- PDD-NOS (pervasive developmental disorder-not otherwise specified) -- Phobias -- Pica -- PKU (phenylketonuria) -- PPD (paranoid personality disorder) -- PWS (Prader-Willi syndrome) -- RAD (reactive attachment disorder) -- RS (Rett's syndrome) -- SAD (seasonal affective disorder) -- SAD (separation anxiety disorder) -- SID (sensory integration disorder) -- SLD (speech-language disorder) -- SLOS (Smith-Lemli-Opitz syndrome) -- SM (selective mutism) -- SMS (Smith-Magenis syndrome) -- SPD (schizoid personality disorder) -- SPLD (semantic pragmatic language disorder) -- STPD (schizotypal personality disorder) -- TS (Tourette syndrome) -- WD (Wilson's disease) -- WS (Williams syndrome) -- XXYS (XXY syndrome) -- ZS (Zellweger syndrome) -- Resources -- General resources -- Autism resources -- Eating disorder resources -- Learning disability resources -- Index."From ADD (Attention Deficit Disorder) to ZS (Zellweger Syndrome) - there are alphabet disorders for almost every medical condition, from those caused by serious, rare genetic diseases to more common learning disabilities that hinder children's academic and social progress." "Alphabet Kids have disorders that are often concurrent, interconnected or mistaken for one another, for example, the frequent combination of ASD, OCD, APD, SID and ADD - hence, "Alphabet Kids." If a doctor only diagnoses one condition, he or she may have missed others. As the rates of these disorders dramatically rise, Alphabet Kids explains it all. Robbie Woliver covers more than 70 different childhood disorders, providing information on causes, cures, treatments and prognoses. Chapters include a comprehensive list of signs and symptoms, and most of the disorders are illustrated with sometimes heartbreaking, but always inspirational true-life stories of a child with the particular disorder." "This easy-to-read go-to guide will help parents and professionals to sort through all the interconnected childhood developmental, neurobiological and psychological disorders and serve as a roadmap to help start the families' journey for correct diagnoses, effective treatment and better understanding of their Alphabet Kids."--BOOK JACKET.
Subjects: Encyclopedias.; Behavior disorders in children; Neurobehavioral disorders; Child development deviations; Syndromes; Diseases;
Available copies: 6 / Total copies: 7
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25 women who defied limitations / by Berne, Emma Carlson,1979-author.(CARDINAL)352645;
Includes bibliographical references and index."Discover 25 women whose disabilities did not stand in the way of their great achievements. Each woman profiled in this collection faced the challenge of a disability while pursuing excellence in her field, including the arts, sciences, sports, and politics"--1010L
Subjects: Biographies.; Case studies.; Humor.; Trivia and miscellanea.; Ondrasek, Naomi.; Shanahan, Jesse.; Grandin, Temple.; Saks, Elyn R., 1955-; Duckworth, Tammy, 1968-; Chandran, Suda.; Glennie, Evelyn.; Matlin, Marlee.; Gordy, Sarah.; Kihungi, Jane.; Thom, Jessica.; Giffords, Gabrielle D. (Gabrielle Dee), 1970-; Loughner, Jared Lee, 1988-; Giffords, Gabrielle D. (Gabrielle Dee), 1970-; Young, Stella.; Mabhena, Prudence.; Kahlo, Frida; Shriver, Eunice Kennedy.; Claiborne, Loretta.; Fryke, Wendy.; Runyan, Marla, 1969-; Nemati, Zahra.; Keller, Helen, 1880-1968; Sullivan, Annie, 1866-1936; Werner, Chelsea.; Hamilton, Bethany.; McClammer, Chelsea.; Jordan, Barbara.; Jamison, Kay R.; United States. Congress. House; United States. Congress. Senate; Special Olympics, Inc.; Olympic Games 2016 : Rio de Janeiro, Brazil); Immigrant experience.; Memoirs and biographies.; African-American biographies.; Cerebral palsy; Scientists; Scientists; Scientists; Scientists; Women scientists; Women scientists; Women scientists; Inflammatory bowel diseases.; Ehlers-Danlos syndrome.; Genetic disorders; Astronomers; Astronomers; Astronomy; Women astronomers; College teachers.; Science teachers.; College teachers; Women college teachers; Mental illness; Psychiatrists; Psychiatry.; People with bipolar disorder; Autistic people; Autism.; Autism spectrum disorders.; Animal scientists; Animal specialists; Sensory disorders.; Schizophrenics; Schizophrenia; Murder; Firearms and crime.; Women legislators; Legislators; Firearms; Schizophrenia.; Mental health laws; Veterans; Multiracial families; Women veterans; Multiracial people; Multiracial people; Asian Americans; Asian American women; Iraq War, 2003-2011; Iraq War, 2003-2011; Iraq War, 2003-2011; Iraq War, 2003-2011; Women and the military; Women and war; Feminism.; Discrimination.; Prejudices.; Racism.; Classism.; Sexism.; Multiculturalism.; Race discrimination; Social justice.; Immigrants.; Politicians; Women political activists.; Women politicians; Women political candidates; Women lawyers; Lawyers; National characteristics, American.; Justice, Administration of; African American women legislators; African American women; Mothers; Women veterans; African American families; Social justice; Civil rights workers; Civil rights.; Poliomyelitis; Multiple sclerosis; Lawyers; African American women lawyers; African American women; African American women politicians; African American women; African American women political activists; African American women educators.; African American women; African American women; African American women civil rights workers; African American women civil rights workers; African American women; African American politicians.; African American political activists; African American politicians; African American political activists.; African-American Interest.; African American feminists; African American families.; Women; African Americans; Revolutionaries; African American women; African American women social reformers.; Women; African American women social reformers; African American women social reformers; African American women; African American women; African Americans.; Women; Women; Women; Women; Women's rights; African Americans; African Americans; Civil rights workers; Civil rights workers; Deaf women.; Women authors.; Deaf people.; Blind.; Deaf children; Deaf people; Deaf children; Deafblind women; Deaf people; Deafness.; Deafblind people; Deafblind women; Deafblind people; Blind people; Women authors, American.; Women authors, American; Women; Women; Women authors, American; Women authors; Biography; Biography; Deafness in children.; People with disabilities; People with disabilities; Models (Persons); Models (Persons); Models (Persons); Iranian Americans; Iranian Americans; Women athletes; Stargardt disease.; Equus; Horsemanship; Horsemanship; Horsemen and horsewomen; Horses; Dressage.; Shark attacks.; Surfing; Surfers; Extreme sports; Women surfers.; Olympic athletes; Olympics; Olympics; Olympic athletes.; Children with cerebral palsy; People with cerebral palsy; Cerebral palsy; Tourette syndrome.; Comedians.; Archery; People with disabilities; Women with disabilities.; African Americans; African American athletes.; Track and field athletes; African American track and field athletes; African American track and field athletes.; Biography; African American interest.; Authors; Editors; Women editors; Women comedians; Comedians; People with mental disabilities; People with mental disabilities; Down syndrome; Down syndrome; African American singers; African American entertainers; African American entertainers; Down syndrome; Painters; Success.; Osteogenesis imperfecta.; Actors; Television actors and actresses; Actresses; Actors; Actresses; Motion picture actors and actresses; Motion picture actors and actresses; Amputees.; Hard of hearing people.; Hard of hearing children.; Blindness.; Musicians; Women musicians.; Musicians; Dancers; Dance; East Indians.; Women artists.; Women artists; Women artists; Women painters; Self-actualization (Psychology); History, Modern; Feminists; Feminism; Feminism; Feminists; Feminism; Feminism; Television actors and actresses; Actors; Communism.; Biography.; Painters; Wheelchairs; People with disabilities; Feminism.; Women's movement.; Racism.; Sexism.; Mothers.; Women.; Womyn.; Feminists.;
Available copies: 1 / Total copies: 1
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