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A face for Picasso [sound recording] : coming of age with Crouzon syndrome by Henley, Ariel,1991-author,narrator.;
Read by the author.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome--a rare condition where the bones in the head fuse prematurely. Growing up, Ariel and her sister endured numerous appearance-altering procedures. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.
Subjects: Young adult literature.; Audiobooks.; Autobiographies.; Henley, Ariel, 1991-; Craniofacial dysostosis;
Available copies: 2 / Total copies: 2
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A face for Picasso : coming of age with Crouzon syndrome / by Henley, Ariel,1991-author.;
Includes bibliographical references.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacketGrades 10-12Ages 12-18880LAccelerated Reader AR
Subjects: Autobiographies.; Young adult literature.; Henley, Ariel, 1991-; Craniofacial dysostosis;
Available copies: 28 / Total copies: 31
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Not all heroes wear capes : the incredible story of how one young man found happiness by embracing his differences / by Lancaster, Jonathan,author.;
Includes bibliographical references.Finding self-acceptance hasn't always been easy. I was abandoned at birth with a facial difference, and as I got older, I began to hate my face and the world I lived in. Gradually, through trial and error, random moments with strangers, and some tragic haircuts, I've found self-love and happiness. This book is the story of how I found my way out of difficult times, and how you can do the same. Jono Lancaster was born with Treacher Collins Syndrome -- a condition that affects facial appearance -- and at only two weeks old, he found himself in foster care. In his remarkable story, Jono shares the highs and lows of his journey and how he turned his differences into his greatest strengths. Inspirational, empowering and moving -- this is an extraordinary memoir with a powerful you are strong enough to become your own hero (Cape optional.)
Subjects: Autobiographies.; Lancaster, Jonathan.; Lancaster, Jonathan; Mandibulofacial dysostosis;
Available copies: 1 / Total copies: 2
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A life that matters : transforming faces, renewing lives / by Salyer, Kenneth E.(CARDINAL)893569;
Sick & afraid -- Choosing plastic surgery -- Building a dream -- Two faces -- The Dogaru girls -- Petro -- A normal face to love -- Conjoined -- Face to face -- Change, reflection, resolve -- Beautiful faces -- Seed, blossom & fruit.
Subjects: Autobiographies.; Plastic surgeons; Skull; Face; Craniofacial dysostosis.; Surgery, Plastic.;
Available copies: 1 / Total copies: 1
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Normal : a mother and her beautiful son / by Newman, Magdalena,author.(CARDINAL)826602; Liftin, Hilary,author.(CARDINAL)653561; Palacio, R. J.,writer of foreword.(CARDINAL)343069;
For Magda Newman, normal was a goal--she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel's severe Treacher Collins syndrome--a craniofacial condition--meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly? In this moving memoir, Newman, with the help of her son, tells the story of raising Nathaniel, from the shock she and her husband faced when he was born, to the inspiration of Nathaniel's own strength and quirky humor. All this while also facing both non-Hodgkins and Hodgkins lymphoma diagnoses of her own. This uplifting story of a family tackling complex and terrifying circumstances with love and resilience is a true testament to Magda and her family, and to families everywhere who quietly but courageously persist.
Subjects: Autobiographies.; Biographies.; Newman, Magdalena.; Newman, Nathaniel; Dysostosis; Facial bones; Families; Genetic disorders; Mothers and sons.;
Available copies: 6 / Total copies: 8
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Normal : one kid's extraordinary journey / by Newman, Magdalena,author.; Newman, Nathaniel,author.(CARDINAL)826600; Liftin, Hilary,author.(CARDINAL)653561; Swaab, Neil,illustrator.(CARDINAL)470644; Adaptation of (work):Newman, Magdalena.Normal : a mother and her beautiful son.;
Ages 10+Grades 7 to 8."Normal. Who is to say what this word means? For Magda Newman, it was a goal. She wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments his friends took for granted. But Nathaniel's severe Treacher Collins syndrome -- a craniofacial condition -- meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly? But Nathaniel looks at 'normal' from a completely different perspective. In this uplifting and humorous memoir that includes black-and-white comic illustrations, mother and son tell the story of his growing up -- from facing sixty-seven surgeries before the age of fifteen, to making friends, moving across the country, and persevering through hardships. How they tackle extraordinary circumstances with love and resilience is a true testament to Magda and Nathaniel's family, and to families everywhere who quietly but courageously persist."--880LAccelerated Reader AR
Subjects: Biographies.; Newman, Nathaniel; Newman, Magdalena.; Facial bones; Mandibulofacial dysostosis; Genetic disorders; Mothers and sons; Families;
Available copies: 14 / Total copies: 15
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No todos los héroes llevan capa : la extraordinaria historia de un joven que encontró la felicidad aceptando sus diferencias / by Lancaster, Jono,author.; Alcaina, Ana,translator.(CARDINAL)598533;
"Aprender a aceptarme no siempre ha sido fácil. Me abandonaron nada más nacer por mi rostro diferente, y a medida que crecía, iba odiando más mi cara y el mundo en el que vivía. Poco a poco, a base de ensayo y error, encuentros inesperados y algunos cortes de pelo trágicos, he encontrado el amor propio y la felicidad. Este libro es la historia de cómo superé los momentos más difíciles de mi vida y de cómo tú también puedes conseguirlo. Jono Lancaster comparte su viaje de éxitos y fracasos desde el orfanato donde lo abandonaron con dos semanas de vida hasta hoy. A lo largo de estas páginas, nos emociona y nos inspira para que aprendamos, como él, a hacer de las diferencias nuestra mayor fuerza."--Back cover.
Subjects: autobiographies (literary works); Autobiographies.; Autobiographies.; Lancaster, Jonathan.; Lancaster, Jonathan; Mandibulofacial dysostosis;
Available copies: 1 / Total copies: 1
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