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When your child has a chronic medical illness : a guide for the parenting journey / by Sileo, Frank J.,1967-author.(CARDINAL)475113; Potter, Carol S.,author.; Rosen, Lawrence D.,author of foreword.;
Includes bibliographical references and index."Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists. You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child. Along with suggestions for making laughter and mindfuness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone"-- Provided by publisher.
Subjects: Chronically ill children.; Parents of chronically ill children.;
Available copies: 6 / Total copies: 6
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The harvest / by McNaughton, John,1950-film director.director.; Lancellotti, Stephen,screenwriter.author.; Jones, Steven A.,film producer.producer.; Shannon, Michael,1974-actor.; Fonda, Peter,1940-2019,actor.; Morton, Samantha,actor.; Calis, Natasha,actor.; Tahan, Charlie,actor.; Williams, Meadow,actor.; Lyles, Leslie,actor.; Elephant Eye Films,production company.; IFC Midnight (Firm),presenter.; Living Out Loud Film Productions,presenter.; Scream Factory (Firm),film distributor.; Shout! Factory (Firm),film distributor.;
Music, George S. Clinton ; editor, Bill Pankow ; director of photograpy, Rachel Morrison.Michael Shannon, Peter Fonda, Samantha Morton, Natasha Calis, Charlie Tahan, Meadow Williams, Leslie Lyles.A sinister couple who keeps their sick son in a secluded environment find their controlled lives, and the disturbing secrets they hold, challenged by a young girl who moves in next door.MPAA rating: Not rated.DVD ; anamorphic widescreen (1.85:1) presentation ; Dolby digital 5.1 surround, 2.0 Dolby digital stereo.
Subjects: Fiction films.; Thrillers (Motion pictures.; Video recordings for the hearing impaired.; Feature films.; Horror films.; Parents of chronically ill children; Family secrets; Neighbors;
Available copies: 1 / Total copies: 1
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Parenting children with diabetes : a guide to understanding and managing the issues / by LeBow, Eliot,1971-author.(CARDINAL)814491;
Includes bibliographical references (pages 197-198) and index.Parenting Children with Diabetes offers parents a 360-degree view of what is happening to their child living with diabetes, providing special tools, insight, and education to help parents and their children navigate diabetes management, communicate clearly and effectively, and live safely and healthfully in the world around them.
Subjects: Diabetes in children; Diabetic children.; Diabetic children; Parents of chronically ill children.;
Available copies: 11 / Total copies: 11
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A short good life : her father tells Liza's story of facing death / by Lister, Philip,1953-Author(DLC)n 2021045752;
Machine generated contents note: Table of Contents -- Introduction: The Wonderful World of Color 1 -- Part I. All the Way to the Deep End 5 -- 1 Bone Marrow Biopsy 6 -- 2 Day Zero 11 -- 3 Induction 19 -- 4 A Bumpy Road 28 -- 5 Complications 35 -- 6 Living with What Do You Call It 61 -- Part II. Transplantation: From Hither to Yon 85 -- 7 Limbo 86 -- 8 Second Year, Second Medical Center 94 -- 9 Final Preparations 102 -- 10 Transplant 115 -- 11 Home Again, Again 132 -- 12 Fog 140 -- 13 GVHD and PUVA 148 -- 14 New Troubles: Diabetes and Pain 164 -- Part III. Heart to Heart 175 -- 15 Questions 176 -- 16 Did You Get That? 186 -- 17 Supports 193 -- 18 Alert Again -- Acknowledgments 272 -- Index 275.It's unusual to access a child's mind during the magic years of childhood. It's rarer when the child is facing her death. Liza, an ardent child with a deep love of cows and the color purple was diagnosed with leukemia at age four and died two years later in 1996. Liza was an unusually expressive child and her parents, both child psychiatrists, were uniquely oriented to appreciate the richness of a child's mind. Through writing this book, Liza's father strove to reveal the inner world of a child's mind--and a parent's mind--as few other books can. At its center, this is the story of a child's psyche growing and striving to understand all she could of her experience, and of a small family coping with life's biggest challenges. It is a story of love's power to help a family cope and endure despite loss, and to grow, through darkness, back toward a full embrace of life. Through the process, the family emerges transformed, awed by the capacities of this child.
Subjects: Biographies; Lister, Philip, 1953-; Lister, Liza; Leukemia; Caregivers; Father and child; Chronically ill children; Parents of chronically ill children.;
Available copies: 1 / Total copies: 1
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More than you can handle : six years of parenting on the edge / by Sancho, Miguel,author.;
"The personally devastating and medically enthralling story of a child who is cured of a deadly immune deficiency. It's a parent's worst nightmare: a child's apparently ordinary symptoms turn out to signal a serious illness. This is what happened to Miguel Sancho when his son Sebastian was only 6 months old. The discovery that he had a fatal immune deficiency known as Chronic Granulomatous Disease (CGD) left the family with few and terrifying options. Sancho's riveting tale of the diagnosis and treatment of his son's illness takes us deep inside the workings of the immune system, which influences every part of the body, and into the cutting-edge treatments that border on the miraculous. Ultimately Sebastian is saved with a bone marrow transplant using discarded umbilical cord blood, a cutting-edge technique pioneered and practiced by the medical wizards at Duke"--
Subjects: Autobiographies.; Sancho, Miguel.; Sancho, Sebastian, 2012-; Chronic granulomatous disease; Parents of chronically ill children;
Available copies: 2 / Total copies: 2
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The unlikely village of Eden : a memoir / by Nadler, Emma,author.(CARDINAL)894737;
This Feels Like a Lot -- Cheeseburger in a Coma -- As Shiny as Our Faces -- A Very Natural Birth Story -- An Electric Pulse -- Puke, Part I -- Game Changer -- Puke, Part XCVIII -- Every Gorgeous Living Being -- Live a Little -- The Cuburbs -- Caregiver Meets Coachella -- Family-ish -- The Eden -- Years -- Calling It -- No Pity, Just Pizza -- Just Because We Are Alive -- The Village of Therapy -- Kitty and the Bold Days -- Walking in the Moonlight -- The Opposite of Boring -- California, Nope -- I've Got This -- Pandemic Parenting for the Rest of Us -- If Not Now, When -- The Whole House -- Mother's Day Gifts -- Short-lived and Soothing -- Maybe We Could Be Better than Fine -- No More Crying at the Sink -- Humble, Extraordinary Devotion -- If Not for Eden."A profoundly personal and hopeful memoir about mothering, unconventional love, and finding community in unexpected places"--
Subjects: Autobiographies.; Nadler, Emma.; Parents of developmentally disabled children; Parents of chronically ill children; Women psychotherapists; Caregivers; Mother and child;
Available copies: 0 / Total copies: 1
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Anything for my child : making impossible decisions for medically complex children / by Nimmo, Stephanie,1970-Author(DLC)no2018030704;
Includes bibliographical references."Fuelled by personal experience and interviews with clinicians and families, this compassionate book explores the realities of caring for a child with complex medical needs. It provides a vital insight into different parents' experiences to help medical professionals understand the roots of conflict and work with families to support patients"--.
Subjects: Nimmo, Stephanie, 1970-; Parents of chronically ill children; Chronically ill children; Chronically ill children; Children with disabilities; Children with disabilities; Palliative treatment; Terminally ill children; Children; Children;
Available copies: 1 / Total copies: 1
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The dark side [sound recording] : a novel / by Steel, Danielle,author.(CARDINAL)341853; Braun, Michael(Actor),narrator.; Recorded Books, Inc.,producer.(CARDINAL)340508;
Narrated by Michael Braun.Zoe Morgan's childhood was marked by her younger sister's tragic illness, watching as her parents dedicated themselves completely to her final days and then divorced. As a young woman driven by these painful memories, Zoe sets the bar high for herself, studying hard and pursuing a career in the nonprofit world, where her deep compassion for disadvantaged children finds a focus. When Zoe falls in love and has her own child, she is determined to be a perfect mother as well. But before long, old scars long dormant begin to pull Zoe to the edge of an abyss too terrifying to contemplate. As Zoe is haunted by the ghosts of the past, her story will become a race against time and a tale of psychological suspense that no reader will soon forget.
Subjects: Domestic fiction.; Psychological fiction.; Thrillers (Fiction); Audiobooks.; Divorced parents; Families; Long-term care of the sick; Parent and child; Motherhood; Divorce; Chronically ill children;
Available copies: 26 / Total copies: 29
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Little bite, big trouble : a bird's-eye view of Lyme Disease / by Sanchez, Sarah Schlichte,author.; Unger, Natassje,illustrator.;
Mamma Bird is so happy to finally have a family. But a mysterious illness is taking away her strength and stamina. This winsome story affirms the challenges to parenting with a chronic illness, specifically Lyme disease. It also educates children and gives them a deeper understanding of invisible disabilities.
Subjects: Fiction.; Birds; Lyme disease;
Available copies: 1 / Total copies: 1
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Healing stories : picture books for the big & small changes in a child's life / by Golding, Jacqueline M.(CARDINAL)367155;
Security in relationship -- A resilient sense of self -- Imagination -- Emotional awareness -- Anger -- Fear -- Worry, guilt, jealousy, and sadness -- Bedtime worries -- Separation and parents' travel -- Having a bad day -- Feelings about being little and growing up -- Learning to use the potty -- Starting school or day care -- Losing a tooth -- All kinds of families -- Adoption -- Arrival of a baby -- Moving house -- Parents' conflict and divorce -- Friendship -- Bullying -- Diversity and prejudice -- Health and nutrition -- Minor or actute illness -- Medical care -- Serious or chronic illness -- Illness of another person -- Dental care -- Vision problems -- Death of a pet -- Death of an important person -- Natural disaster -- War and violence -- Abuse and abuse prevention.
Subjects: Bibliotherapy for children.;
Available copies: 1 / Total copies: 1
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