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22q deletion / by Keir, Gemma,author.(CARDINAL)892830; Walker-Parker, Adam,illustrator.;
"This picture book is dedicated to children born with a condition called 22q deletion, also known as DiGeorge Syndrome. Explore the day in the life of a young boy with 22q through bright, colourful illustrations and text. Perfect for teachers, parents and children alike, this book will bring awareness of the condition and teach children how to be supportive and be kind. This is the first book released from The abilities in me book series. This collection of books will show how each child can celebrate their abilities within their disability, find acceptance and create awareness to those around them. Dedicated to Logan Keir, age 6 with 22q deletion."--Amazon.ca.
Subjects: Genetic disorders in children;
© [2020], The Abilities In Me,
Available copies: 1 / Total copies: 1
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Degrees of difficulty / by Justicz, Julie E.,author.(CARDINAL)816898;
"Love is the foundation of family, but at what cost? After Ben Novotny is born with a rare chromosomal disorder that produces profound mental disability and brain-racking seizures, his parents, Caroline and Perry, and their two other children are asked to give more than they have. When Ben is an infant, the care and the fear are constant. The demands and pressure only mount when he and his older brother and sister become teenagers. Ben needs even more from his family, just as Hugo, the athlete and the 'good soul', and Ivy, the ambitious rebel, must carve out their own identities. Over the span of decades, this deep and understanding novel follow each family member, Perry and Caroline, Hugo and Ivy, as their lives diverge. In Degrees of Difficulty, grace is found amidst heartache, love finds a way after loss."--Provided by publisher.
Subjects: Domestic fiction.; Genetic disorders in children; Parents of children with disabilities; Siblings of people with disabilities;
Available copies: 1 / Total copies: 1
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Emma's laugh : the gift of second chances - a memoir / by Kupershmit, Diana,Author(local)tlcaut6353073794025200;
As Diana surveyed her newborn baby's face, languid body, and absent cry, she knew something was wrong. Then the doctors delivered devastating news: her first child, Emma, had been born with a rare genetic disorder that would leave her profoundly physically and intellectually disabled. Diana imagined life with a child with disabilities as a dark and insular one--a life in which she would be forced to exist in the periphery alongside her daughter. Convinced of her inability to love her "imperfect" child and give her the best care and life she deserved, Diana gave Emma up for adoption. But as with all things that are meant to be, Emma found her way back home. As Emma grew, Diana watched her live life determinedly and unapologetically, radiating love always. Emma evolved from a survivor to a warrior, and the little girl that Diana didn't think she could love enough rearranged her heart. In her short eighteen years of life, Emma gifted her family the indelible lesson of the healing and redemptive power of love. This is a mother's requiem to her perfectly imperfect child--a child who left too soon, but whose lessons continue to inspire a life lived and loved.
Subjects: Kupershmit, Diana; Parents of children with disabilities; Children with disabilities; Genetic disorders in children.; Mothers and daughters.;
Available copies: 1 / Total copies: 1
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We the scientists : how a daring team of parents and doctors forged a new path for medicine / by Marcus, Amy Dockser,author.(CARDINAL)660042;
Includes bibliographical references and index."Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"--
Subjects: Niemann-Pick diseases; Rare diseases; Genetic disorders in children; Parents of children with disabilities.;
Available copies: 4 / Total copies: 4
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The boy in the moon : a father's search for his disabled son / by Brown, Ian,1954-(CARDINAL)368469;
Includes bibliographical references.
Subjects: Biographies.; Brown, Ian, 1954-; Brown, Walker, 1996-; Fathers and sons.; Genetic disorders in children; Genetic disorders in children; Parents of children with disabilities;
Available copies: 1 / Total copies: 1
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The boy in the moon : a father's journey to understand his extraordinary son / by Brown, Ian,1954-(CARDINAL)368469;
Ian Brown's son, Walker, was born with a genetic mutation so rare that doctors call it an orphan syndrome: at most, three hundred people around the world live with it. At thirteen, Walker is still in diapers: he is globally delayed, he can't speak, and he has to wear cuffs on both arms so he won't constantly hit himself. He will require constant care for the rest of his life. The boy in the moon tells the story of one frail boy and the tiny constellation of people who love and care for him. From this intimate perspective, Ian Brown opens out a profound meditation on what life is worth, and what it means for all of us.
Subjects: Biographies.; Brown, Walker, 1996-; Brown, Ian, 1954-; Genetic disorders in children; Genetic disorders in children; Parents of children with disabilities; Genetic disorders.; Fathers and sons.; Children with disabilities;
Available copies: 7 / Total copies: 7
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Long for this world / by Byers, Michael.(CARDINAL)646978;
Specializing in a rare disease that causes children to age drastically, Dr. Henry Moss is confronted with an ethical dilemma when he meets a family whose two children are affected in dramatically different ways by the same disease.
Subjects: Domestic fiction.; Medical fiction.; Psychological fiction.; Aging; Austrian Americans; Genetic disorders in children; Geneticists; Sick children; Suicide victims; Women immigrants;
Available copies: 2 / Total copies: 2
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Long for this world / by Byers, Michael.;
Subjects: Psychological fiction.; Domestic fiction.; Medical fiction.; Novels.; Geneticists; Genetic disorders in children; Aging; Austrian Americans; Women immigrants; Suicide victims; Sick children;
Available copies: 1 / Total copies: 1
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Haatchi & Little B : the inspiring true story of one boy and his dog / by Holden, Wendy,1961-author.(CARDINAL)466745;
Includes bibliographical references (pages 207-210) and index."#1 International Bestseller When Owen met Haatchi, the lives of one adorable little boy and one great, big dog were destined to change forever. Owen--known to his family as "little buddy" or "Little B"--has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi--an adorable Anatolian Shepherd puppy--was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited. But kind-hearted Will and Colleen Howkins, Little B's father and step-mother, decided to introduce the big dog and the little boy to each other, and an unbelievable bond was formed that transformed both boy and dog in miraculous ways. Haatchi &Little B is the true story of an astonishing little boy, a very special dog, and the inspiring, inseparable pair that they make together. "--"This book tells the amazing true story of one astonishing little boy and the very special dog who has changed his life forever. On a bitterly cold night in January 2012, Haatchi the dog was hit over the head and abandoned on a railway line in London, England, to be hit by a train. Somehow, the puppy survived the blood loss from his partially severed leg and rear tail and managed to crawl away to safety. Fortunately, Haatchi was rescued, although vets couldn't save his leg and tail. He came to the attention of Colleen Drummond and Will Howkins, who aren't just kind-hearted dog-lovers. They are also the dad and stepmother of Owen (known to his family as Little B for 'little buddy'). Owen, now aged eight, has an extremely rare genetic disorder which causes his muscles to permanently tense. Largely confined to a wheelchair, Owen was withdrawn and anxious and found it difficult to make friends. But when the little boy awoke the morning after Haatchi arrived, he immediately fell in love with the severely disabled rescue animal who would, in turn, rescue him"--
Subjects: Biographies.; Hawkins, Owen, 2005-; Haatchi, 2011-; Dogs; Human-animal relationships; Dogs; Genetic disorders in children;
Available copies: 10 / Total copies: 10
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Haatchi & little B [large print] : the inspiring true story of one boy and his dog / by Holden, Wendy,1961-author.(CARDINAL)466745;
Includes bibliographical references.When Owen met Haatchi, the lives of one adorable little boy and one great, big dog were destined to change forever. Owen--known to his family as "little buddy" or "Little B"--has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi--an adorable Anatolian Shepherd puppy--was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited. But kind-hearted Will and Colleen Howkins, Little B's father and step-mother, decided to introduce the big dog and the little boy to each other, and an unbelievable bond was formed that transformed both boy and dog in miraculous ways.
Subjects: Large print books.; Biographies.; Hawkins, Owen, 2005-; Haatchi, 2011-; Howkins, Owen, 2005-; Human-animal relationships; Dogs; Genetic disorders in children;
Available copies: 2 / Total copies: 2
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