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A face for Picasso : coming of age with Crouzon syndrome / Ariel Henley.

At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket

Record details

  • ISBN: 9780374314071
  • ISBN: 0374314071
  • Physical Description: 378 pages ; 22 cm
  • Edition: First edition.
  • Publisher: New York : Farrar Straus Giroux, 2021.

Content descriptions

Bibliography, etc. Note:
Includes bibliographical references.
Target Audience Note:
Ages 12-18 Farrar Straus Giroux Books for Young Readers.
Grades 10-12 Farrar Straus Giroux Books for Young Readers.
880L Lexile
Study Program Information Note:
Accelerated Reader AR UG 6.3 15 514655.
Subject: Henley, Ariel, 1991- > Health.
Craniofacial dysostosis > Patients > Biography.
Genre: Autobiographies.
Young adult literature.

Available copies

  • 31 of 34 copies available at NC Cardinal. (Show)
  • 1 of 1 copy available at Fontana Regional Library.

Holds

  • 0 current holds with 34 total copies.
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Location Call Number / Copy Notes Barcode Shelving Location Status Due Date
Jackson County Public Library YA HENLEY (Text) 39493109426850 Young Adult Nonfiction Available -

Summary: At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket

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